Sunday, July 01, 2012

My Granddaughter is in NEED of MAJOR surgery to LIVE!


Dear Friends and Family:


Did you know that children born with Esophageal Atresia (EA) with or without a Tracheoesophageal Fistula (TEF) are unlikely to survive without surgery to reconnect the esophagus?  And, these children are likely to have Respiratory and Gastrointestinal (GI) complications which may continue throughout their lifetime?  Well, this is what my family was faced with when our daughter, Eryn, was diagnosed with this birth defect 4 years ago. 

To compound the matter, children with Esophageal Atresia often have associated complications which may include Tracheomalacia, GERD, Esophageal Strictures, and even a recurrence of aTracheoesophageal Fistula.  Sometimes these complications cause the child to have a “Smoker’s Cough,” dysphasia, and frequent and reoccurring pneumonia.

Baby Sister’s Song: EA/TEF Awareness was birthed out of my family’s plea for medical help for our daughter.  We had exhausted all local options, and yet, our daughter continues to suffer with chronic aspiration pneumonia and GERD.  After much research, we discovered that Cincinnati Children’s Hospital Medical Center had a reputation for finding solutions to the most difficult esophageal disorders… Exactly what Eryn needs. 

On Sunday, July 29, 2012, I am hosting and participating in Baby Sister’s Song: EA/TEF Walk-A-Thon.   Our goal is to find answers and heighten awareness about EA/TEF, and ultimately raise funds so Eryn can get to Cincinnati Children’s for evaluation and treatment.

I am asking for your help and support.  Your contribution to Baby Sister’s Song: EA/TEF Walk-A-Thon will be truly appreciated.  Please register and make donations athttp://www.shadenaturals.com/baby-sisters-song-walk-a-thon/

I also encourage you to build your own team.  To create a team, you simply ask other people to register and join you in walking, and/or sponsoring you in the walk.  You can give your Team a name, register your team, and if you’d like, you can set a specific amount for each person to join your team.  You may also choose to allow your team member to specify the amount they wish to contribute, so you have flexibility in how to establish your team.

Help Eryn get to Cincinnati Children's Hospital.  Please Donate at:
Baby Sister's Song: EA/TEF Walk-A-Thon http://shadenaturals.com/baby-sisters-song-walk-a-thon/


Your support and participation in this Walk-A-Thon is very much appreciated!  


With heartfelt thanks,                                           

Nneka

Nneka Barnes
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Help Eryn get to Cincinnati Children's Hospital.  Please Donate at:
Baby Sister's Song: EA/TEF Walk-A-Thon http://shadenaturals.com/baby-sisters-song-walk-a-thon/

Thank YOU!!!

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